PATIENT TESTIMONIES: more stories from NEN patients

Neuroendocrine neoplasms (NENs) and metastatic castration-resistant prostate cancer (mCRPC) are currently being treated with radioligand therapies (RLTs), a novel method of cancer treatment. People with breast, kidney, colon, or pancreatic cancer, have enormous potential to also be treated with this innovative therapy.

One of SPARC-Europe's objectives is to keep promoting the advantages of this treatment by widely disseminating stories about patients’ experiences, as patient education, awareness, and understanding of the treatment all remain barriers to RLT acceptance. Over the next two weeks, the Alliance will be releasing five new testimonials for their series of patient testimony videos, following the stories unveiled earlier this year.

The videos have been created in collaboration with the patient organisation International Neuroendocrine Cancer Alliance (INCA) and Steering Committee Member Dr. Ken Herrmann, featuring the testimonials of five neuroendocrine neoplasms patients: Barbara from Italy, Tomas from Sweden, Martin from Bulgaria, Joel from France and Volker from Germany.

Throughout their stories, patients outline their diagnoses and treatment pathway, their experience with RLT and the future they foresee for the treatment and NEN patients, wishing to shed light to policymakers and stakeholders on this therapy known for improving patients’ quality of life.

In the fourth of the five stories, Joel from France talks about his journey to a diagnosis of pancreatic neuroendocrine tumor and the positive experience he has had with radioligand therapy. Joel stated the radioligand therapy was “the softest treatment he ever received” during his treatment pathway and wished for RLT treatment to be available for all NENs and more widespread across the EU. Watch the video to learn more!

Stay tuned to also learn more about Volker and hear his story!